I'm part of the online community for parents with kids with clubfeet over at yahoo groups. (nosurgery4clubfoot) I get lots of feedback and questions answered from parents who have gone, or are going through the same things as we are. It's great to know I'm not alone and that most parents share most, if not all, of the same thoughts, concerns, and feelings as I do. It's a very supportive community and I'm very glad I found it. I mean most doctors do not have time to linger around answering all your questions. The important medical questions YES, but all the other questions like which baby carrier works best for babies in casts or boots&bars, or which car seat best accommodates clubfeet babies... those sort of things that only parents who have gone through the process can tell you. They have the experience and can give you advice and tell you their story. Doctors don't have time for that sort of thing.
Anyways I came across a post where someone posted an essay they wrote about the experience of bringing their child in for surgery. It brought tears to my eyes. I think it hit real close to home since we will be going through that in less then 2 weeks. I thought I would share a link for anyone who is interested in reading it. It's quite moving:
I'm so glad that more parents are speaking out and educating the public. Before I knew that Fionn would be born with clubfeet, I had no idea what clubfeet was!! I know it's not so common but awareness is key.
On another note, I'm not sure if it's because this week's casts seem tighter but Fionn keeps complaining that he's hurting. I know he has a sore so that's probably bothering him. He's also got some new bruises where the casts ends below his knees. They've shown up in the last two days. Luckily he'll get a new pair on thursday. He just needs to hang in there a few days. I guess some discomfort is to be expected but I assumed since he didn't complain through the first week that things would be the same this week. But otherwise he's still in good spirits and doing very well. Just less walking.
On another note, I'm not sure if it's because this week's casts seem tighter but Fionn keeps complaining that he's hurting. I know he has a sore so that's probably bothering him. He's also got some new bruises where the casts ends below his knees. They've shown up in the last two days. Luckily he'll get a new pair on thursday. He just needs to hang in there a few days. I guess some discomfort is to be expected but I assumed since he didn't complain through the first week that things would be the same this week. But otherwise he's still in good spirits and doing very well. Just less walking.
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