In just over 2 weeks we will be starting this journey. I'm nervous to say the least but I am also hopeful and optimistic about the process as a whole. I received the prescription for a wheel chair in the mail yesterday and i'm now in the process of getting that sorted out. I should be able to pick it up some time next week. I want to have it around for a little while before he is actually casted. I want him to be able to get comfortable with it and not have it show up the day of. I think it will help me get use to it too. He'll be out of sorts with his casts on already that I don't want him to have to get familiar with a wheelchair on the same day. This way it will be around for at least a few days and I'll be able to talk to him about it. Although I'm not sure how much of that he'll actually understand or retain. But the point is, I think it's important to talk to him, and make him feel included and like he's a part of this process too. I don't want him to feel like this is all happening TO him. He should know that all this is to help him.
The other night when I went to check on him before I went to bed, he screamed out in pain, complaining that his foot hurt. I think he must have been having a cramp or something but it broke my heart. And this was with NO casts. I just held him and massaged his foot and he was okay after that but I hate to think about him getting a cramp with his casts. Anyways at least the casts are changed every week so he'll get to stretch out and air out his feet for a few minutes.
On a not so great note, Fionn has pneumonia again. This is getting a little bit ridiculous but all the doctors still don't have any ideas as to why he keeps getting pneumonia. He's doing better right now and we're working on getting him and keeping him healthy for his surgery, and hopefully for a long long time after!
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| At Starbucks. This picture makes me happy! |
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